Parent Project Muscular Dystrophy and the Foundation to Eradicate Duchenne honor bipartisan Congressional leaders with Advocacy Leadership Awards for their support.
WASHINGTON, March 9, 2026 – Parent Project Muscular Dystrophy (PPMD), working together with the Foundation to Eradicate Duchenne (FED), has announced the recipients of the 2026 Advocacy Leadership Awards. These awards recognize members of Congress for their dedicated support and leadership in advocating for the Duchenne muscular dystrophy community. The announcement highlights the importance of bipartisan collaboration in addressing the needs of individuals and families affected by this condition.
The awards acknowledge the efforts of political leaders from both major parties who have demonstrated a commitment to advancing policies and initiatives that benefit the Duchenne community. This bipartisan support is crucial for enacting meaningful change and ensuring that research, treatment, and support services are accessible to those who need them.
The 2026 Advocacy Leadership Awards will be presented to the following members of Congress:
The selection of these individuals reflects their demonstrated leadership and dedication to the Duchenne community through legislative action, advocacy, and awareness efforts.
Advocacy plays a vital role in raising awareness about Duchenne muscular dystrophy and influencing policy decisions that can improve the lives of affected individuals. By working with elected officials, organizations like PPMD and FED can ensure that the needs of the Duchenne community are heard and addressed at the highest levels of government.
Duchenne muscular dystrophy is a genetic disorder that primarily affects males, causing progressive muscle weakness and degeneration. There is currently no cure, so advocacy for research funding, early diagnosis, and improved care standards is paramount.
Parent Project Muscular Dystrophy (PPMD) is a leading non-profit organization dedicated to fighting Duchenne muscular dystrophy. PPMD funds research, advocates for policy changes, and provides support and resources to families affected by the disease.
The Foundation to Eradicate Duchenne (FED) shares a similar mission, focusing on accelerating research and developing effective treatments for Duchenne muscular dystrophy. Through strategic partnerships and innovative funding models, FED aims to find a cure and improve the quality of life for individuals living with Duchenne.
The Advocacy Leadership Awards serve as a reminder of the ongoing need for continued advocacy and collaboration to address the challenges facing the Duchenne community. By recognizing and celebrating the contributions of dedicated leaders, PPMD and FED hope to inspire further action and progress towards finding a cure and improving the lives of those affected by this devastating disease. The bipartisan support in Congress will remain key for any future progress for the DMD community.
